The fashion world still isn’t designed for disabled women like me

Earlier this year, I was invited to a reception at Buckingham Palace, by the then-Queen Consort to celebrate International Women’s Day. It was fabulous and I felt so honoured to be there. I had a dress specially made for the event but, due to the cold weather which exacerbates my condition, I was unable to wear it. So, I ended up meeting the future Queen wearing children’s clothes.

Having to resort to wearing ill-fitting children’s clothes is anything but dignified or empowering. Why should this be my only option? Why are there more clothing options for dogs than there are for people with disabilities?

There are one billion people on our planet that experience some kind of disability. That’s a huge amount of people who are unable to wear what they want to wear, refused the basic right of self-expression and made to feel less confident, successful and happy.

Just think of that feeling when you try something on and feel instantly transformed. You feel good and you look good – and that equals confidence. When I’ve been fortunate enough to experience that feeling, I’m ready to take on the world. If only getting there didn’t require hundreds of extra pounds in either tailoring clothes, or shopping with more expensive, adaptive clothing suppliers. Recent research has found disabled people face an extra £1,000 in unavoidable extra costs; clothing makes up a big part of this.

Much of my job is about looking presentable. I don’t have the privilege of being able to walk into a shop and come away with something straight off the rails. Not only do I have to pay for clothes that don’t fit me, but I also then have to pay for someone to cut half of it off. Whilst there are a small minority of brands working on adaptive fashion, I can’t afford to pay £100 for something that would cost £20 for everyone else.

When I shop online, I have to buy the size I think I am, the size bigger and the size smaller. Because when I try it on, I must think about how it’s going to look when it’s been tailored, and what size would work best for that. It’s constant trial and error. I have numerous life hacks when buying clothes – certain materials don’t need hemming, for example. So not only is there a massive financial issue, but there are also time and sustainability issues to consider.

Adaptive clothing, and clothing for those with additional needs is not a niche issue. Making adaptive clothing more widely available would be good for business. But there are people challenging the status quo. Victoria Jenkins is one of these people. She founded Unhidden – an adaptive fashion range for people with disabilities. So, when she heard about my meeting with Queen Camilla, she offered to expand her range for people of short stature with my help.

My collaboration with Victoria is a really exciting project-in-the-making and, with her increasing profile, including taking part again in London Fashion Week, I hope other retailers will look at her clothing range and realise that they have been missing out on a fantastic business opportunity for too long.